Having a genetic condition, that you know is painful & can be horrible & knowing you gave it to your child sucks more than I can put words to...
Saturday, June 5, 2010
Girl Child's Annual Check Up
We went to the doctor for girl-child's annual appt & did get a referral for her to go down to Mayo to see if she has Ehlers-Danlos Syndrome (EDS) like I do. I'm 90% sure she does, I feel very conflicted about it. I'm glad we are figuring it out young so she has a better chance than I did of not becoming so disabled so young. I'm glad we'll not have to deal with docs thinking she's lying about her pain. I'm glad we will have the chance to teach her to care for her joints. I'm guilty about the fact I gave this to her. I'm guilty about what I know lies ahead. I'm sad for the fact she won't be "normal". I'm sad for the fact she will have this color many choices she makes in life. I'm worried about how severe hers will be. I'm worried about her future.